Skip to main content

Thursday, August 9th

Yesterday afternoon was an interesting one.  I was taking Otto's temperature, and low and behold... a small fever.  So after a discussion with the doc, we headed to Yale.  Otto was admitted and is now on antibiotics.  He has been fever free since being there, so that is a great sign.  We are also waiting on blood cultures and hoping there will be no growth in 48 hours (which would bring us to Friday afternoon).  With his ANC being at zero along with his admittance to the hospital, he will not be allowed to go home until his ANC levels are above 200.  So, needless to say, we will be there for a few days. 

As we have asked before in the past, please continue to say your prayers.  Even though things are running smoothly and it is a little bump in the road, it's still an emotional dip.  We all are trying to view our journey as a marathon, the greatest run of our lives.  Otto's just at a rest stop right now.  He's getting his carbs and liquid hydration in order to continue to race.  His strides may vary throughout, but he'll get to the finish line. 

Hopefully, he will get a week at home before going in for the start of Round 3.  For now, we continue to wait for that ANC level to rise.

Thanks so much for all those who continue to pray, send food, give donations (whether money or time), rides to activities, etc.  We appreciate it all!

So much love,

Mark, Leigh, Otto, Tess, and Lulu

Comments

  1. UnknownAugust 10, 2018 at 9:10 AM

    You got this Otto. Little speed bump. Love to you all!!! ❤️😘

    ReplyDelete
  2. UnknownAugust 10, 2018 at 5:51 PM

    Hi all. Just wanted to say all of us here at the Walker house have been thinking of you and sending our prayers. Otto, you are one tough kid! Hang in there. And Sam says stay away from the green Jello ( you never know what's in there!) Liz, Doug, Sam, and Gabriel

    ReplyDelete

Post a Comment

Popular posts from this blog

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had. A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.   The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.   We have also researched and reached out to another hospital.  The particular
7 comments
Read more

Friday, June 22nd

Good morning!  Otto wants you all to know that he's doing well.  He had another great night, and we are over the moon happy that he has been fever free for 18 hours.  Mark went to rounds this morning with the team, and Otto's counts continue to look really good.  His white blood cells are continuing to dwindle (which is what we want) and his body is preparing itself for the ultimate fight.  So, that's pretty amazing news for us, considering what was dropped on our laps Friday afternoon. I know that it is most likely that people are wondering if we are in good hands.  I will tell you that we are.  The doctors are on top of everything - from what is currently going on to what could happen - and have a plan to counter it all.  We are incredibly lucky to be surrounded by individuals whose life's passion is researching and helping kids with AML to beat it and succeed.  With that being said, we see these individuals from time to time throughout the day.   Our ultimat
11 comments
Read more

Wednesday, June 20th

Hi everyone,   Hoping this message finds you all well.  We are ever so grateful for the continuous messages of prayer, positivity and love.  Otto is a very lucky boy to have all of you in his world.   So, we got back the results of his spinal tap and we are incredibly happy.  There are no leukemia cells that appear to be in the spine.  What does this mean?  Three less bags of chemo to have to take during the 10 day period!!!   Yesterday was Day 2 of chemo.  He had one dose in the morning followed by two doses in the early evening.  For the most part, his body handled them ok.  He's still getting fevers here and there, but thankfully Tylenol kicks in to make things better.    Today is Day 3.  We are looking at 4 doses throughout the day.  One thing I am noticing is that chemo makes you tired and sleepy.  All that is telling us is that his body is taking it's time healing itself.  And we are just fine with that!   Two days down and eight more to go!  We've got this,
9 comments
Read more