Skip to main content

Sunday and Monday, November 4th and 5th

Good evening, all!

  Otto has had two nice days in a row.  He's shown more energy and is taking walks, chatting it up with nurses and enjoying hanging out.  We have also had a few visitors over the last few days.  That has also been nice.

  We heard back from Boston and we will be having a phone conference with one of their oncologists that have reviewed his records.  Although our doctor has been in contact with the one in Boston along with warning us that we will most likely hear the same diagnosis and treatment protocol from her, we still need to talk to this lady.  We just need to know if there are other alternatives to the path we are currently on.




  We do say it often, but it bears repeating.  Thank you to each and every one of you who find the time to send love, prayers and positive thoughts our way.  We really do find it helpful, more so Otto.  That's part of where we feel he finds his strength to fight.  He has so many people in his corner!!

Sending you all so much love!

Mark, Leigh, Otto, Tess and Lulu

Comments

  1. Looking good, kiddo!! So happy to hear you’ve had a couple good days in a row. Keep them coming!!!!
    Much love always-
    Mrs. Grieder

    ReplyDelete
  2. So glad to see he had a good few days! Looking good kiddo! Way to go Otto!!!! Love that smile! You got this! Much love to you all! ❤️❤️❤️

    ReplyDelete
  3. We love you Funder Family!! We are praying and thinking of all of you each day.
    Otto, not sure if you watch NHRA drag racing, but the finals are on TV Sunday. Yea, I know the NFL is on, but who doesn't enjoy watching top fuel dragsters and funny cars go from zero to 300 mph in 3 seconds!
    We love you bud, keep reminding yourself each day that you are more than a conqueror because of Jesus.
    -Brett, Stephanie, Lily and Alexa

    ReplyDelete
  4. Otto, your smile and awesome spirit know a lot more than the numbers :) You not only have this, you’re telling it where to go. We pray for you guys all the time. Hugs and more of them from all of us

    ReplyDelete
  5. I'm Glad that you are enjoying some good days. It must be all the healing prayers coming your way from family , MMS, and friends. Keep fighting, stay strong and receive the prayers and positivity!

    ReplyDelete
  6. So glad to hear he is laughing and walking about. Such a brave young man.His smile is beautiful. Keep enjoying those good days . Hoping you get to have more of them. Sending hugs your way

    ReplyDelete

Post a Comment

Popular posts from this blog

Friday, October 12th

Otto has had a good day today.  He's been out at least twice going on nice long walks.  We were really happy to see that his lungs were hard at work!

It looks like Otto's counts for his ANC level is 0.  We were hoping that they were on their way up, but the 300 ANC was a false read.  So, unfortunately, that means he has to continue with the no eating, no drinking rule. 

Tomorrow we are working with the team to see if we will give Otto this particular medicine that will stimulate the production neutrophils, the substance that the body produces to create the ANC.  By doing this, we will be hopefully helping his body develop the ANC count over the next few days.  This will allow his body to get into the range that would be considered safe for surgery.  Surgery is needed to remove the fungus that is attached to his liver.  We pray that there are no major side effects from this.

Tomorrow, Mark and Tess, along with some other close friends, will be attending a barn raising.  The own…

One Day at a Time

Hey all,

  So as many of you know or are coming to find out, Otto has been diagnosed with AML.  This is a type of leukemia.  He is being treated at Yale Children's Center and will be here for the next 4-6 weeks.  Chemo started last night and we saw minimal side effects.


  Our boy is a fighter!  He's going to make it out of this place stronger than ever!!


  Many people have reached out and to that we are grateful.  We can completely feel the love and support from so many of our community members, who are really like family.  For all of you who have said prayers, put Otto's name on a prayer list, etc. - we thank you.  We deeply believe in the power of prayer and the wonderful things that can happen due to that.


  As for now, it is a waiting game.  Waiting for the 10 days of treatment to be done and completed.  Waiting for blood counts to continuously come back with what we hope to see are positive changes.  Waiting to see what the next steps are.  But together, our family wi…

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had.

A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.  
The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.  
We have also researched and reached out to another hospital.  The particular hospital ha…