Skip to main content

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had.

A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.  

The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.  

We have also researched and reached out to another hospital.  The particular hospital has expertise in liver surgeries and childhood cancer.  We just sent his records, scans and slides.  We are waiting for a response in regards to what they see and think.  

Due to all the bleeding that Otto has been enduring, he has continued to get transfusion after transfusion.  He has been allowed to return to drinking fluids and eating soft foods.  This has put him in happier spirits for sure.


Although we have been given some pretty rough news, we continue to pray, to stay positive, for that glimmer of hope remains.


We continue to give thanks to everyone who continues to send cards, donations, gifts and such.  We have had some nice visits from friends and family.  Otto was greeted by our awesome neighbor today with a gigantic carved pumpkin.  It was a nice tribute to the Red Sox!  Our Make a Wish family stopped by as well, with all sorts of fun things.  Otto was the lucky recipient of a sign basketball and hat along with a heartfelt message from our favorite college basketball coach, Jim Boeheim.  


We also continue to be grateful for having such amazing care from a staff who loves our kid.  The nurses, especially, always make it a point to drop in and touch base (even if Otto isn't on their caseload for the day).  They know how to make a family feel loved!

We are taking this time to spend as much time as we can as a family.  We are looking forward to gathering with friends to watch the big games over the next few days.  



Please continue to support us through prayer and positivity as we walk along this rough patch in the road.

With so much love and gratitude,

Mark, Leigh, Otto, Tess and Lulu

Comments


  1. Otto- so many prayers coming your way. I’m even rooting for the Red Sox- did you ever think I’d say that??!!! Only for you kiddo! Stay strong. Hugs and love to Tess too! ~ Mrs. Grieder

    ReplyDelete
  2. Thinking of you, Otto! What's this about Boeheim being your favorite coach though?! Cuse fans in CT, uh oh ;)

    ReplyDelete
  3. Prayers to Otto and the Funderburk family.

    ReplyDelete
  4. World Series Champs!!!!! The teasing and taunting (and emails from Tess!) that I endured this whole post season is worth it. They won it for you, Otto!! Lots of love and prayers to all of you- keep that strength
    ~Mrs. Grieder

    ReplyDelete
  5. Thinking of you Otto and sending Prayers for healing.
    💜Ms Veillette

    ReplyDelete
  6. Continued love and prayers to you all!

    ReplyDelete

Post a Comment

Popular posts from this blog

Friday, October 12th

Otto has had a good day today.  He's been out at least twice going on nice long walks.  We were really happy to see that his lungs were hard at work!

It looks like Otto's counts for his ANC level is 0.  We were hoping that they were on their way up, but the 300 ANC was a false read.  So, unfortunately, that means he has to continue with the no eating, no drinking rule. 

Tomorrow we are working with the team to see if we will give Otto this particular medicine that will stimulate the production neutrophils, the substance that the body produces to create the ANC.  By doing this, we will be hopefully helping his body develop the ANC count over the next few days.  This will allow his body to get into the range that would be considered safe for surgery.  Surgery is needed to remove the fungus that is attached to his liver.  We pray that there are no major side effects from this.

Tomorrow, Mark and Tess, along with some other close friends, will be attending a barn raising.  The own…

One Day at a Time

Hey all,

  So as many of you know or are coming to find out, Otto has been diagnosed with AML.  This is a type of leukemia.  He is being treated at Yale Children's Center and will be here for the next 4-6 weeks.  Chemo started last night and we saw minimal side effects.


  Our boy is a fighter!  He's going to make it out of this place stronger than ever!!


  Many people have reached out and to that we are grateful.  We can completely feel the love and support from so many of our community members, who are really like family.  For all of you who have said prayers, put Otto's name on a prayer list, etc. - we thank you.  We deeply believe in the power of prayer and the wonderful things that can happen due to that.


  As for now, it is a waiting game.  Waiting for the 10 days of treatment to be done and completed.  Waiting for blood counts to continuously come back with what we hope to see are positive changes.  Waiting to see what the next steps are.  But together, our family wi…