We are still here hanging at Yale. Otto has had a rough last 2 days. There have been a few different issues popping up. One of the things that we are noticing is that he has high blood pressure. Due to this, there have been a few ultrasounds completed. The results have come back indicating that his liver, abdomen and kidneys are functioning just fine. We think we have a better idea of what it could be. Meds have been given and we are waiting to see how he reacts to them. Currently, his blood pressure is making its way back to normal (which is a great thing). He continues to have fevers, but the Tylenol helps to fight them.
Yesterday, there were a few great things that happened. We received a gift of holy water from my aunt's dear friend. She went to Ireland and sent it to us. It was a very sweet and thoughtful gift and is much appreciated. Secondly, we were visited by a gentlemen whose son created a charity prior to passing from cancer. It was his Make a Wish to create a charity that gave away electronic devices to those who were inpatient for treatment/illness related to having cancer. So, the Mikey's Way organization stopped by and gave our kiddo his own laptop. That totally made his day. Otto couldn't believe that this was happening. Mikey's dad is an amazing man who works every day to make sure that this organization keeps going. Lastly, the Sox won! Yes - had to put this in here. Otto had plenty of T-shirts, sweatshirts and jerseys to choose from. His collection of Red Sox gear has multiplied over the last few months due to some incredible people (and we thank each person who has made that happen).
If you get a chance, say a prayer that his health continues to improve. We all know that this is par for the course during this journey, but when your in the middle of the storm, all you want to do is get out of it quickly and safely.
Sending you all our thanks and love!
Mark, Leigh, Otto, Tess and Lulu
Yesterday, there were a few great things that happened. We received a gift of holy water from my aunt's dear friend. She went to Ireland and sent it to us. It was a very sweet and thoughtful gift and is much appreciated. Secondly, we were visited by a gentlemen whose son created a charity prior to passing from cancer. It was his Make a Wish to create a charity that gave away electronic devices to those who were inpatient for treatment/illness related to having cancer. So, the Mikey's Way organization stopped by and gave our kiddo his own laptop. That totally made his day. Otto couldn't believe that this was happening. Mikey's dad is an amazing man who works every day to make sure that this organization keeps going. Lastly, the Sox won! Yes - had to put this in here. Otto had plenty of T-shirts, sweatshirts and jerseys to choose from. His collection of Red Sox gear has multiplied over the last few months due to some incredible people (and we thank each person who has made that happen).
If you get a chance, say a prayer that his health continues to improve. We all know that this is par for the course during this journey, but when your in the middle of the storm, all you want to do is get out of it quickly and safely.
Sending you all our thanks and love!
Mark, Leigh, Otto, Tess and Lulu
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