Skip to main content

Wednesday, July 11th

It is a good day today: one, you have a special guest blogger, Mark (Dad), and Otto's ANC raised to 200 today, which is very good news. ANC is monitored closely as it can hover at a number, raise and lower as his counts recover. It's an exciting win today!

We mentioned a special guest visit yesterday and that guest was Joe #weatherman Moravsky, American Ninja Warrior! What an amazing visit. Joe was great! He had inspirational words for Otto, shared training secrets and challenges he'd faced, relating it all back to Otto's fight with AML. Joe even joined us to make "shrinky dinks" with the Hole in the Wall Gang. So, we shrank him!  A big thanks to our friends at Victorinox Swiss Army for helping to make the connection.  Otto now wants to be a Meteorologist, MLB player, American Ninja Warrior. #ambition! 

 


We are looking forward to more of an increase in his ANC level and coming home soon. Day 24, today waiting on 30.

Love and hugs to all our friends and family and supporters,

Mark, Leigh, Otto, Tess, Lulu

Comments

  1. UnknownJuly 12, 2018 at 5:18 AM

    Fabulous news on the numbers. Wohooo. What a fantastic visitor. That’s super cool! Keep up the good work Otto! You are all so strong and fabulous! Love you guys! ❤️

    ReplyDelete
    Replies
    1. funderbloggerJuly 12, 2018 at 5:42 AM

      Thanks, love! We are stronger than we realized due to all this love and support! You are all so amazing to us! xoxo

      Delete

Post a Comment

Popular posts from this blog

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had. A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.   The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.   We have also researched and reached out to another hospital.  The particular
7 comments
Read more

Friday, June 22nd

Good morning!  Otto wants you all to know that he's doing well.  He had another great night, and we are over the moon happy that he has been fever free for 18 hours.  Mark went to rounds this morning with the team, and Otto's counts continue to look really good.  His white blood cells are continuing to dwindle (which is what we want) and his body is preparing itself for the ultimate fight.  So, that's pretty amazing news for us, considering what was dropped on our laps Friday afternoon. I know that it is most likely that people are wondering if we are in good hands.  I will tell you that we are.  The doctors are on top of everything - from what is currently going on to what could happen - and have a plan to counter it all.  We are incredibly lucky to be surrounded by individuals whose life's passion is researching and helping kids with AML to beat it and succeed.  With that being said, we see these individuals from time to time throughout the day.   Our ultimat
11 comments
Read more

Wednesday, June 20th

Hi everyone,   Hoping this message finds you all well.  We are ever so grateful for the continuous messages of prayer, positivity and love.  Otto is a very lucky boy to have all of you in his world.   So, we got back the results of his spinal tap and we are incredibly happy.  There are no leukemia cells that appear to be in the spine.  What does this mean?  Three less bags of chemo to have to take during the 10 day period!!!   Yesterday was Day 2 of chemo.  He had one dose in the morning followed by two doses in the early evening.  For the most part, his body handled them ok.  He's still getting fevers here and there, but thankfully Tylenol kicks in to make things better.    Today is Day 3.  We are looking at 4 doses throughout the day.  One thing I am noticing is that chemo makes you tired and sleepy.  All that is telling us is that his body is taking it's time healing itself.  And we are just fine with that!   Two days down and eight more to go!  We've got this,
9 comments
Read more