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Saturday, June 30th

Hello All,

What a fun day yesterday!  We started off by being greeted at rounds by our super heroes, the nurses, doctors and interns of Yale Hem/Oc!  We went over counts and things continue to look good.  He did have some blood platelets transfused Friday.  He continues to have some minor issues with his eyes being sensitive, but a little saline and other drops help.



We had a wonderful visit from one of the kiddos from baseball.  We were given an amazing poster designed by a great friend that was covered with messages from the PYB team.  Three walls are covered now (and I think we may be in the lead)!


Later in the afternoon, Hero Up day came and it was a hit! We went to the Hole in the Wall Gang gathering in the activity room where we drew Super Heroes (they had no clue that was our theme night btw), that we later used to decorate with.  Afterwards, we were joined by friends and had some dinner.  We then played games.  We even got the nurses to play along!  Otto had a great time and enjoyed it all.  We were short a few people, and missed them terribly!!

 

 
 


Friday night, the girls came home to a finished deck.  The fantastic and incredible dads from PYB stopped by to finish up some boards, put the railings up and complete the pool security screen.  A special thank you to Rich, Brian, Jimmy, Mark, Alex, Dave and Matt.  You have helped us so much more than you know!  xoxo




As for Saturday, we again, had some great visitors show up to say hello.  Those friendly faces means so much to all of us.  The day has gone well and everyone enjoyed the day.

As always, we are super appreciative of the support, gifts and activities that everyone is sending our way. They all keep our kids busy and happy.

All our love!

Mark, Leigh, Otto, Tess and Lu

Comments

  1. UnknownJuly 1, 2018 at 3:28 AM

    Thank you for providing this window that allows so many to stay connected to you, your family and most importantly to Otto during this challenging time. I check each day to see how things are going and am so pleased at the positive direction of Otto’s treatment! Of course, I’m not surprised by your ability to keep conjuring up ways to turn lemons into to lemonade! Your Friday theme days are brilliant. Can’t imagine that Yale has ever seen the magic of Mrs. Fun’s positivity before. Sending healing hugs along with thoughts and prayers to Otto and your beautiful family. Stay strong! You got this! ❤️ Joan Benson

    ReplyDelete
    Replies
    1. funderbloggerJuly 1, 2018 at 4:57 AM

      Thanks so much Joan! Our oncologist who is working with Otto just stopped by to say hello. She can't believe what we have done to keep spirits up around here. She was saying she wish that the entire floor could do something like this. Gets me thinking... :)

      Delete

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