Skip to main content

Tuesday - Thursday, November 6th - 8th


Hello there!

  The last three days have been good ones for Otto.  He continues to be stronger and is showing no more signs of internal bleeding.  Things have seemed to have settled for now.  He has been on multiple walks and even stayed out in the healing garden for over an hour the other day!  Of course, he enjoyed playing Monopoly Deal with one of the wonderful volunteers. 

                                                

  Otto has been allowed to start back with solid foods.  We are sticking to one new item a day from a list of easily digestible foods.  So far, so good!  He continues to drink bone broth, which we feel has been very helpful to his healing process.

  Today, we were asked if we wanted to take portraits through the Circle of Care organization.  Apparently, they do this once a year and often ask to use them in decorating the hallway of 7-3.  We aren't sure if we will be up on the wall, however, we had a fun time participating!  Glamour shots at its finest!!


   
 

  Thank you to all who have visited this past week.  Otto has been in high spirits due to seeing friends and family.  We also continue to thank you for your prayers and positive wishes.  We really feel as though this has been tremendously helpful in Otto's journey.  In addition, we would also like to thank everyone with their sweet, kind gestures - whether it be a home cooked meal, a night out, or a delivery of bone broth, all is appreciated!

  We are hoping all is well with everyone.  Thanks so much for all your love and support!  One would say we are moving mountains!!

  Mark, Leigh, Otto, Tess and Lulu

Comments

  1. Beautiful pictures of a beautiful family! Otto - you and your family have inspired so many people with your strength and courage each and every day. Keep on moving those mountains, kiddo!
    Much love always -
    Mrs. Grieder

    ReplyDelete
  2. Awwww! Love the photos!!! The Otto B Strong sweatshirt is DOPE! (I know. No one says that anymore... except me when I be a gangsta'!)

    Sending our love Otto, Leigh, Mark, Tess and Lulu!

    ReplyDelete
  3. I love your pictures. They are beautiful!!! I'm so happy to hear how good Otto's days have been. Much love and prayers sent to all the Funderburk's.❤️
    -Lainie

    ReplyDelete
  4. It was so nice to meet you all and take your pictures ... is an honor to be a part of your journey -

    ReplyDelete

Post a Comment

Popular posts from this blog

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had. A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.   The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.   We have also researched and reached out to another hospital.  The particular

Friday, June 22nd

Good morning!  Otto wants you all to know that he's doing well.  He had another great night, and we are over the moon happy that he has been fever free for 18 hours.  Mark went to rounds this morning with the team, and Otto's counts continue to look really good.  His white blood cells are continuing to dwindle (which is what we want) and his body is preparing itself for the ultimate fight.  So, that's pretty amazing news for us, considering what was dropped on our laps Friday afternoon. I know that it is most likely that people are wondering if we are in good hands.  I will tell you that we are.  The doctors are on top of everything - from what is currently going on to what could happen - and have a plan to counter it all.  We are incredibly lucky to be surrounded by individuals whose life's passion is researching and helping kids with AML to beat it and succeed.  With that being said, we see these individuals from time to time throughout the day.   Our ultimat

Monday thru Thursday December 3rd - 6th

Hello Everyone, Last chance to get an Otto Strong T-shirt if you haven't already. Here is the link: www.rsvpinvitations.net/shop. Order by Sunday. It has been a long difficult week. Otto's nights are still restless with bathroom trips, occasional coughing, nose bleeds, and nausea. We've peeled back some meds to help relieve some of these side effects making him more comfortable and we've increased his pain medication to alleviate his pain. His baby tooth bleeding has finally gotten under control after several days trying various techniques from some starch/potato powder, gauze with pressure, amicar(spelling), "magic mouthwash", gel gauze, to some surgical glue - sorry,  that was not too specific with the medical names, but rest assured it was a lot of attempts and failures, but finally not bleeding! Throughout it all we were down as low as a count of 2 for red blood cells and 8 for platelets. Otto received several bags for support.  Monday thru