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Saturday, June 23rd

There were so many great moments yesterday.  Where to begin?

Otto went for a walk a few times down to what is known as the "Healing Garden".  A few days before, we had to literally help him out of bed.  It would take us a good 10 minutes to get down there.  As soon as we would get to the entrance to the garden, he would want to turn back because he felt so tired and weak.  Yesterday, he willingly got up (in fact - reminded us that we needed to get our exercise in!).  We took only a few minutes before reaching the entrance, and in addition was able to get outside and enjoy that beautiful sunshine!


Another highlight from yesterday is that he went the entire day without having a fever.  This was HUGE!  All the doctors were pretty happy about this, and are recommending that he be off one of the two antibiotics.   Counts, again during the day, looked really good.  We know it's one day at a time, but for now, we are so happy that Otto is responding positively.


Lastly, we had some fantastic visitors last night.  It was as if our room went from "children's oncology" to "Mexican Fiesta"!  Thanks to many people who joined in, Cinco de Mayo flare went all over the walls.  Our family was treated to tacos and the fixings followed by Cinco de Mayo Bingo!  It was such a great time, but what made it more so special was seeing our guy laugh and smile.  You can't put a price on that!

Day 6 of treatment today - bring it!

As always, thank you for all the love and support!  It means so much!!

Mark, Leigh, Otto, Tess and Lulu

               

Comments

  1. Campbell321June 23, 2018 at 7:30 PM

    Love hearing the positivity!!! Did you get your Circle of Care Bag of Love yet?

    ReplyDelete
    Replies
    1. funderbloggerJune 24, 2018 at 3:41 PM

      We did! It's a great bag filled with all sorts of helpful goodies!!

      Delete
  2. ktslawJune 24, 2018 at 5:49 AM

    Just heard the news recently and got on your blog today. So sorry you are all going through this but your positivity and the apparent progress is so encouraging and spirit lifting. You are all doing it exactly right! Sending prayers to Otto and you all! ❤️

    ReplyDelete

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