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Friday, Saturday, Sunday November 30 to December 2

Hello All,

We've had a busy weekend that started off with an Ugly Sweater Funder Friday with our friends the Mahoneys! What a great way to start the weekend with good friends decorating, playing fun games and just being together. Saturday and Sunday were busy days too, with visits from Granddad, Aunt Laura, Nagys and Lowells . It was so nice to be with everyone and talk, eat, joke and just be together.



Our nights were a little less fun with Otto's coughing acting up some and a little nausea to top it off. This kept us pretty sleepy throughout the weekend and we are in the peak effectiveness of radiation and chemotherapy, so that is contributing to his exhaustion. His Leukemia Cutis is aggressive and he's been having some fevers which could be caused by the leukemia and/or the treatment. We're hoping there is some relief for him in the coming days.

He also lost one of his baby teeth Saturday night from his only chewing side of his mouth, due to the leukemia cutis on that other side of his mouth! This typically is a good thing, but for him, it poses a bleeding problem, so he received several bags of platelets over the weekend for that.

We'll end this post with some nice news. Otto had a little Make a Wish money left over form his trip to Boston. He decided he wanted to buy a remote control car, the Traxxas E-Revo. Pretty much the coolest RC car ever, it goes 70 MPH!! Maybe one evening we'll be able to sneak him to the parking garage where he can drive the car in a more open space than the hallways.


And, The Southbury travel basketball team all wore orange bananas for Otto at their game Sunday! Thank you for the support boys!


One more nice piece of news:  Our UCC church family came by Sunday to decorate our home for the holidays.  It was so wonderful and kind of the UCC Senior Pilgrim Fellowship kids to come by enforce and decorate the with lights! Our yard now looks like the holidays, thank you so much!

With Love and Gratitude,
Mark, Leigh, Otto, Tess and Lulu

Comments

  1. Kerri GriederDecember 3, 2018 at 5:56 AM

    You're rocking those elf shoes, Otto! Sounds like you've got a lot going on right now ... show this thing who's boss!! Keep moving forward and stay strong. Catch all those positive vibes and prayers that are being sent your way!
    Much love always -
    Mrs. Grieder

    ReplyDelete
  2. Lainie RioDecember 5, 2018 at 8:07 AM

    What a cool car!!!! I hope you can sneak into the garage to really let it loose!! Enjoy...
    -Lainie Rio

    ReplyDelete

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