Skip to main content

Thursday, November 1st

Good evening!

  What a wonderful day to wake up and reminisce about yesterday's Wish day.  A special thank you again to Patti, Dawn and Cheryl for making our boy's dream a reality.

  Today has been a good day thus far.  Otto has been up all day, watching videos and movies as well as taking walks to the Healing Garden.  Otto was even able to sit down with the Digital Art Therapist who helped him construct a video comprised of many of the pictures we took at the parade.  He had a wonderful time doing this and was proud of his accomplishment.

  We are waiting to talk to Boston Children's in order to set up a time next week.  We are going to be meeting with a team of individuals who reviewed Otto's case and past history.  We are praying that God will lead them to a better approach to helping Otto through this difficult journey. 

  We were also notified today that Fox 61 will potentially being doing an exclusive on Otto in regards to his recent Make A Wish.  I will keep you up to speed so if you'd like to watch it, you can!

  We would love to say another thank you to all of you who have supported Otto and our family in connection to his Make A Wish.  There are so many behind the scenes volunteers who help to make those dreams come true.  After being part of this whole experience, I can see why so many people want to dedicate their time, efforts and money to support such a wonderful organization.  When speaking to the Make A Wish coordinator for Massachusetts, they will have granted over 400 wishes by the end of this year.  What a beautiful thing!

  Spreading the love through the power of prayer and positivity!

Mark, Leigh, Otto, Tess and Lulu

Comments

  1. Patti F.November 1, 2018 at 1:59 PM

    I cannot stop thinking about Otto's Wish and his smile! They say wishes are blanketed in joy - I'm so happy Otto and your while family had a joyful day!

    ReplyDelete
  2. Kerri GriederNovember 2, 2018 at 3:40 AM

    So glad you all had a wonderful time at the parade! Keep those good days coming, Otto! You got this kiddo! Thinking of you and praying for you every second of every day.
    Much love~
    Mrs. Grieder

    ReplyDelete

Post a Comment

Popular posts from this blog

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had. A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.   The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.   We have also researched and reached out to another hospital.  The particular
7 comments
Read more

Friday, June 22nd

Good morning!  Otto wants you all to know that he's doing well.  He had another great night, and we are over the moon happy that he has been fever free for 18 hours.  Mark went to rounds this morning with the team, and Otto's counts continue to look really good.  His white blood cells are continuing to dwindle (which is what we want) and his body is preparing itself for the ultimate fight.  So, that's pretty amazing news for us, considering what was dropped on our laps Friday afternoon. I know that it is most likely that people are wondering if we are in good hands.  I will tell you that we are.  The doctors are on top of everything - from what is currently going on to what could happen - and have a plan to counter it all.  We are incredibly lucky to be surrounded by individuals whose life's passion is researching and helping kids with AML to beat it and succeed.  With that being said, we see these individuals from time to time throughout the day.   Our ultimat
11 comments
Read more

Wednesday, June 20th

Hi everyone,   Hoping this message finds you all well.  We are ever so grateful for the continuous messages of prayer, positivity and love.  Otto is a very lucky boy to have all of you in his world.   So, we got back the results of his spinal tap and we are incredibly happy.  There are no leukemia cells that appear to be in the spine.  What does this mean?  Three less bags of chemo to have to take during the 10 day period!!!   Yesterday was Day 2 of chemo.  He had one dose in the morning followed by two doses in the early evening.  For the most part, his body handled them ok.  He's still getting fevers here and there, but thankfully Tylenol kicks in to make things better.    Today is Day 3.  We are looking at 4 doses throughout the day.  One thing I am noticing is that chemo makes you tired and sleepy.  All that is telling us is that his body is taking it's time healing itself.  And we are just fine with that!   Two days down and eight more to go!  We've got this,
9 comments
Read more