Otto has had a good day today. He's been out at least twice going on nice long walks. We were really happy to see that his lungs were hard at work!
It looks like Otto's counts for his ANC level is 0. We were hoping that they were on their way up, but the 300 ANC was a false read. So, unfortunately, that means he has to continue with the no eating, no drinking rule.
Tomorrow we are working with the team to see if we will give Otto this particular medicine that will stimulate the production neutrophils, the substance that the body produces to create the ANC. By doing this, we will be hopefully helping his body develop the ANC count over the next few days. This will allow his body to get into the range that would be considered safe for surgery. Surgery is needed to remove the fungus that is attached to his liver. We pray that there are no major side effects from this.
Tomorrow, Mark and Tess, along with some other close friends, will be attending a barn raising. The owner of this company is a former transplant receiver himself. Every year, he asks a few families who are transplant bound to share their stories. We are one of those lucky families. After speaking, each family will be given a donation that comes from the owner's foundation. We are very lucky to be part of such a special event.
Thank you to you all who continue to pray and send positive wishes. We will move mountains in high numbers. If you feel encouraged to do so, please share our story, our blog, and encourage those around you to join us in our prayers and positive wishes. It would mean the world to us!
With love,
Mark, Leigh, Otto, Tess and Lulu
It looks like Otto's counts for his ANC level is 0. We were hoping that they were on their way up, but the 300 ANC was a false read. So, unfortunately, that means he has to continue with the no eating, no drinking rule.
Tomorrow we are working with the team to see if we will give Otto this particular medicine that will stimulate the production neutrophils, the substance that the body produces to create the ANC. By doing this, we will be hopefully helping his body develop the ANC count over the next few days. This will allow his body to get into the range that would be considered safe for surgery. Surgery is needed to remove the fungus that is attached to his liver. We pray that there are no major side effects from this.
Tomorrow, Mark and Tess, along with some other close friends, will be attending a barn raising. The owner of this company is a former transplant receiver himself. Every year, he asks a few families who are transplant bound to share their stories. We are one of those lucky families. After speaking, each family will be given a donation that comes from the owner's foundation. We are very lucky to be part of such a special event.
Thank you to you all who continue to pray and send positive wishes. We will move mountains in high numbers. If you feel encouraged to do so, please share our story, our blog, and encourage those around you to join us in our prayers and positive wishes. It would mean the world to us!
With love,
Mark, Leigh, Otto, Tess and Lulu
Nupogen is a godsend. Praying for you all!!
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