Skip to main content

Monday, Tuesday and Wednesday, August 6th, 7th and 8th

Good morning!

  We've had a good last three days.  Everyone in the family has been really busy, whether it has been talking to friends, going to the lake, or going on a playdate.  As for now, life is good!

  Otto had his Clinic visit yesterday.  His numbers came back and he's in a good range for now.  His ANC is zero, but the other numbers are right where they need to be.  Friday is our next visit.  This one may be a longer one if numbers are too low and transfusions are needed.  Towards the end of next week, Otto will be going in for another bone marrow biopsy.  We are praying the results will be exactly the same as before - zero cancer cells.  Once there for that procedure, he will also get a form of chemo directly into his spinal fluid.  This has always been the case before starting another round of chemo.  As far as Round 3 goes, that will begin once his numbers are above a certain number.  This does not mean that he will start at the end of this coming week.  It is all dependent upon the numbers.

 We also started the process of setting up a home bound tutor for possibly the first half of the school year.   We are thinking that the five rounds will be completed by then.  (Fingers crossed and prayers answered!)

  We are hoping all of you are doing well.  Enjoy this last month of summer!  The sunshine, and humidity, are calling you!  xoxo


Mark, Leigh, Otto, Tess and Lulu

Comments

Post a Comment

Popular posts from this blog

Friday, June 22nd

Good morning!  Otto wants you all to know that he's doing well.  He had another great night, and we are over the moon happy that he has been fever free for 18 hours.  Mark went to rounds this morning with the team, and Otto's counts continue to look really good.  His white blood cells are continuing to dwindle (which is what we want) and his body is preparing itself for the ultimate fight.  So, that's pretty amazing news for us, considering what was dropped on our laps Friday afternoon. I know that it is most likely that people are wondering if we are in good hands.  I will tell you that we are.  The doctors are on top of everything - from what is currently going on to what could happen - and have a plan to counter it all.  We are incredibly lucky to be surrounded by individuals whose life's passion is researching and helping kids with AML to beat it and succeed.  With that being said, we see these individuals from time to time throu...
9 comments
Read more

Wednesday, Thursday and Friday, October 24th, 25th and 26th

So many things have been happening since we last posted.  There have been many meetings, discussions, and realizations we have had. A few days ago, Otto started showing signs of bleeding.  The doctors have decided it could be one of two things.  It could be related to his infection in his intestines or it could be a sign of the fungal infection spreading.  After reviewing scans and speaking to the surgical team, the team feels this is related to the fungal infection.   The fungal infection is one that is extremely rare.  It is also one that is very difficult to treat.  We were hopeful that with a building ANC alongside the three antifungals, that Otto's body would be able to contain the fungus.  Instead, his body is showing signs of it spreading.  The team will send him for another scan towards the end of next week to see if there are any differences in size of the three masses on his liver.   We have also researche...
6 comments
Read more

Wednesday, June 20th

Hi everyone,   Hoping this message finds you all well.  We are ever so grateful for the continuous messages of prayer, positivity and love.  Otto is a very lucky boy to have all of you in his world.   So, we got back the results of his spinal tap and we are incredibly happy.  There are no leukemia cells that appear to be in the spine.  What does this mean?  Three less bags of chemo to have to take during the 10 day period!!!   Yesterday was Day 2 of chemo.  He had one dose in the morning followed by two doses in the early evening.  For the most part, his body handled them ok.  He's still getting fevers here and there, but thankfully Tylenol kicks in to make things better.    Today is Day 3.  We are looking at 4 doses throughout the day.  One thing I am noticing is that chemo makes you tired and sleepy.  All that is telling us is that his body is taking it's time healing itself.  And we are just ...
9 comments
Read more