Hi everyone,
Our family time at home, since we were released on Friday, has been amazing. Being surrounded by healthy friends and family have helped in continuing to keep Otto's spirits up. In fact, Friday theme days have been so uplifting, he has requested that when we are home that we continue with them. Our hearts are so happy that he has continued to stay positive when others could so easily go in the opposite direction given his situation. Our family, again, is incredibly thankful for those who have dedicated their creativity, money and time to making those Fridays so special.
We are sorry we haven't blogged since Friday. We were lost in our happiness of having Otto home. He went the entire weekend without having a fever and was able to get outside and enjoy some nice neighborhood walks with friends. Grandy and Papa are with us for the next two weeks. We are so happy to have them with us.
Today, we are back at Yale in the Clinic section of Hem/Onc. It's a little less intense, for it is an outpatient service area for small procedures and such. Otto came in today for the doctors to take a look at his counts as well as take another bone marrow biopsy. In addition, he received another lumbar puncture of chemo. This is part of his treatment going into Round 2. Although this upcoming round won't start for a few days, it was easier to give it to him today versus sedating him again in order to give it. We now sit in his room, waiting for him to come out of his short little nap. On a side note, our Child Life specialist played AC/DC prior to and throughout the procedure. It was great to see him jam out with a smile on his face while he fell asleep!!
Hopefully, by Thursday, we should get some results from his procedures he just endured. His numbers looked excellent going in, and the doctor felt as though everything today went well. Our hopes and prayers are that his counts come back with a zero reading of leukemic cells. If this is the case, he will undergo an 8-day cycle of chemo. He will also be classified as moderate risk. If there are a higher percentage of leukemic cells present in his current biopsy, then he will be classified as high risk. This will mean he will have 6 days of more intensive chemo. We are hoping that we are a long way from the 93% leukemic portion within his bone marrow that was discovered about 30 days ago. So, keep saying those prayers, people! All those positive vibes and prayers are GREATLY appreciated!
We will be sharing more info as we get it. Again, thank you for keeping our family in your thoughts. We are positive about this whole experience, but so much of that is due to all the care, love and support we are soaking in.
With much love and gratitude,
Mark, Leigh, Otto, Tess and Lulu
Our family time at home, since we were released on Friday, has been amazing. Being surrounded by healthy friends and family have helped in continuing to keep Otto's spirits up. In fact, Friday theme days have been so uplifting, he has requested that when we are home that we continue with them. Our hearts are so happy that he has continued to stay positive when others could so easily go in the opposite direction given his situation. Our family, again, is incredibly thankful for those who have dedicated their creativity, money and time to making those Fridays so special.
We are sorry we haven't blogged since Friday. We were lost in our happiness of having Otto home. He went the entire weekend without having a fever and was able to get outside and enjoy some nice neighborhood walks with friends. Grandy and Papa are with us for the next two weeks. We are so happy to have them with us.
Today, we are back at Yale in the Clinic section of Hem/Onc. It's a little less intense, for it is an outpatient service area for small procedures and such. Otto came in today for the doctors to take a look at his counts as well as take another bone marrow biopsy. In addition, he received another lumbar puncture of chemo. This is part of his treatment going into Round 2. Although this upcoming round won't start for a few days, it was easier to give it to him today versus sedating him again in order to give it. We now sit in his room, waiting for him to come out of his short little nap. On a side note, our Child Life specialist played AC/DC prior to and throughout the procedure. It was great to see him jam out with a smile on his face while he fell asleep!!
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| Bone marrow biopsy and lab work getting ready to be delivered and analyzed! |
Hopefully, by Thursday, we should get some results from his procedures he just endured. His numbers looked excellent going in, and the doctor felt as though everything today went well. Our hopes and prayers are that his counts come back with a zero reading of leukemic cells. If this is the case, he will undergo an 8-day cycle of chemo. He will also be classified as moderate risk. If there are a higher percentage of leukemic cells present in his current biopsy, then he will be classified as high risk. This will mean he will have 6 days of more intensive chemo. We are hoping that we are a long way from the 93% leukemic portion within his bone marrow that was discovered about 30 days ago. So, keep saying those prayers, people! All those positive vibes and prayers are GREATLY appreciated!
We will be sharing more info as we get it. Again, thank you for keeping our family in your thoughts. We are positive about this whole experience, but so much of that is due to all the care, love and support we are soaking in.
With much love and gratitude,
Mark, Leigh, Otto, Tess and Lulu
Sounds so positive! Thanks for all the updatess so that we know how to pray specifically. Keep enjoying all the special Fridays!!! Hugs, hugs, hugs!
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