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Wednesday, July 4th

Happy 4th of July from our fun and fantastic room here at Yale Children's Hospital.

Mark and I arrived this morning after having a night out on the town.  Otto got to spend some quality time with our buddy, John, where they built a Legos Star Wars model, watched a movie, and went for walks.  Overall, it was a good night for Otto.   The girls were busy with their friends, too, so Mark and I were able to get away for an evening.  It was so nice to be able to sit, laugh and talk other than in the hospital.  That evening was much appreciated!

Otto's counts still are waiting to rebuild.  His eyes are actually better today.  He's not been asking for the drops, so that's a great thing!  We continue to get ready for Luau Day on Friday.  We got attire ordered and ready to go.  Many staff members have commented on how they, too, are going to dress the part.  So glad that people are enjoying and partaking in our good vibes.

Thank you to everyone who has sent cards, well wishes and packages.  Otto is getting mail on a regular basis and is loving it all.  Yesterday, he received a special gift from my cousins in NJ.  It's not everyday when you get a Boston Red Sox Jersey with your number on the back of it!  It's pretty amazing!!!

Well, that's it for today.  We are hoping to get out to the garden later tonight to watch some fireworks.  Fingers crossed!!

With love,

Mark, Leigh, Otto, Tess and Lulu

Comments

  1. Campbell321July 4, 2018 at 8:12 PM

    I am loving all of this great news of feeling well and having fun! Come on day 21 let’s get an ANC so Otto can get some time at home! Hugs to all :)

    ReplyDelete
    Replies
    1. funderbloggerJuly 5, 2018 at 7:15 AM

      I am right there with you Courtney!!! Hugs to you!

      Delete
  2. UnknownJuly 5, 2018 at 6:14 AM

    ❤️❤️❤️❤️❤️❤️❤️

    ReplyDelete
  3. UnknownJuly 5, 2018 at 7:01 AM

    Glad he liked the jersey!

    ReplyDelete
    Replies
    1. funderbloggerJuly 5, 2018 at 7:18 AM

      He is loving the jersey! He's looking forward to when he will be able to wear it to a Red Sox game. ;)

      Delete

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