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Friday, July 6th

Aloha!  It's Luau Day!!

Our room, as well as ourselves, are dressed in our favorite Hawaiian gear today.  The nurses and docs are joining in, too!  We have quite a few special guests arriving today for some visits.  Otto is excited, but even more so for a few friends coming up from Boston.  It is going to be a great time!

We have been up early today.  Otto is starting to lose some of his hair.  Poor kiddo got some short pieces of hair right in his eye.  Needless to say, we called the nurse for some saline to flush it right out.  It seems to be more bearable now, so hopefully the eyes improve over the course of the day.

We are still waiting to hear about his regular blood work check.  I am assuming that his numbers will be the same.  We are on Day 19, so fingers crossed for some counts to build in the next few days.

Update:  Yesterday, we got some packages in the mail.  A big thank you to my other cousin in NJ who sent along some amazing graphic novels.  Otto is really looking forward to reading them.  He cannot wait to have more people come and visit so he can play that game, too!  We also got a great scrapbook from Grandy and Papa!  All the gifts that have come through the doors are greatly appreciated. 

We are so incredibly proud of how Otto is handling all of this.  He is a tough kiddo who has shown us that with positivity and prayer, we all can persevere.  Go figure that the 12 year old can lead us there!

Hoping all of you have a wonderful day today!  Thank you for each prayer, each positive thought, and each action (no matter what size).

Otto says, "Stay positive and never doubt yourself!"

Much love and gratitude,

Mark, Leigh, Otto, Tess and Lulu

Comments

  1. UnknownJuly 6, 2018 at 3:50 PM

    Hey Otto how r things hanging? Wondering if I can come up n see u next week n if so what do u need me to bring ? Things are very hot out here !
    Text me what u need . Love n kisses grandma pat n what’s his name.

    ReplyDelete
    Replies
    1. funderbloggerJuly 6, 2018 at 8:03 PM

      Hi Grandma Pat! Otto is doing great. He doesn’t need anything so far, but be sure to check in. We are waiting for his counts to rise. If they are big enough by Friday, he could be heading home for two weeks before he faces Round 2 of chemo. We love you and Grandpa Sinusas SO much!!! Thanks for the last visit. Thank you for the sheets, too!! It totally keeps his spirits up! It takes a village, no?!? And we LOVE our village!!! Xoxo

      Delete
  2. UnknownJuly 7, 2018 at 11:46 AM

    Otto truly is one of the strongest dudes I know! We pray for him every day. He’s GOT this!!!! Love you all to pieces! Keep up the good work Otto!!! ❤️❤️

    ReplyDelete

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