Last night was hands down the best night I think he has had in a while. Although we have been warned that he will have a series of good mixed with not so good days, we will take it!
Yesterday's big goal was to get his energy up. In order to get that accomplished, he was given a few bags of red blood cells. What a difference that made! Otto slept less and was definitely more perky. He even played video games on the XBox 1! And if anyone knows our kid - that's a really good sign that he is feeling better. Lol! Otto also received some more platelet and plasma transfusions. This will help ensure that his blood is able to clot better.
We also received a beautiful gift crate from the neighborhood with all sorts of goodies and cards. But the best gift of all was the poster that they made. It's covered in a large heart surrounded by all these little messages of inspiration and hope. Speaking of which, he just obtained a beautiful blanket with a similar vibe. It's a teal fleece blanket covered in words like "healing every strong spirit", "positive energy", "peace", "good thoughts", etc. He's eating that up for sure! He also has a "prayer bear" that was given to him by a dear friend whom he has decided needs to take a spot on his bed. He said he feels like it's giving him positive vibes. :) Lastly, another beautiful friend gave us a small picture of Padre Pio from Italy. He's the patron saint that heals children. So, you know I had to tape that bad boy on his bed! Overall, these last few days at the hospital have been filled with sadness and fright, but at the same time filled with joy and hope. Our family and friends have been an incredible support system. We want our village to know and feel our love and thanks!
I'm praying today is an even better day. My goal is to get him out of bed and moving a little more. Got to get that kid mobile! (of course, without pushing him too hard - ;) no worries!)
Again, as always, ever so grateful and loved!
Mark, Leigh, Otto, Tess and Lu
(BTW - We are changing our sign off to include all of us since each of our 5 family members have been watched and cared for since this rollercoaster began. #ottostrong #19FTW)
Yesterday's big goal was to get his energy up. In order to get that accomplished, he was given a few bags of red blood cells. What a difference that made! Otto slept less and was definitely more perky. He even played video games on the XBox 1! And if anyone knows our kid - that's a really good sign that he is feeling better. Lol! Otto also received some more platelet and plasma transfusions. This will help ensure that his blood is able to clot better.
We also received a beautiful gift crate from the neighborhood with all sorts of goodies and cards. But the best gift of all was the poster that they made. It's covered in a large heart surrounded by all these little messages of inspiration and hope. Speaking of which, he just obtained a beautiful blanket with a similar vibe. It's a teal fleece blanket covered in words like "healing every strong spirit", "positive energy", "peace", "good thoughts", etc. He's eating that up for sure! He also has a "prayer bear" that was given to him by a dear friend whom he has decided needs to take a spot on his bed. He said he feels like it's giving him positive vibes. :) Lastly, another beautiful friend gave us a small picture of Padre Pio from Italy. He's the patron saint that heals children. So, you know I had to tape that bad boy on his bed! Overall, these last few days at the hospital have been filled with sadness and fright, but at the same time filled with joy and hope. Our family and friends have been an incredible support system. We want our village to know and feel our love and thanks!
I'm praying today is an even better day. My goal is to get him out of bed and moving a little more. Got to get that kid mobile! (of course, without pushing him too hard - ;) no worries!)
Again, as always, ever so grateful and loved!
Mark, Leigh, Otto, Tess and Lu
(BTW - We are changing our sign off to include all of us since each of our 5 family members have been watched and cared for since this rollercoaster began. #ottostrong #19FTW)
Your updates are so helpful and reassuring to keep us all in the loop! Saw the awesome-ness of the baseball team at districts and their love for Otto via FB videos!
ReplyDeleteWe're all behind each of you! Stay strong and keep those spirits up, especially when the not-so-good days come.
Thanks so much, love! xoxo
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